Taking strides towards cystic fibrosis awareness

Ebony Acreman and her son Noah. Last week fifty of Ebony's friends and family participated in a walk to raise money for Cystic Fibrosis awareness to support Noah, who was diagnosed at 5 weeks of age.

Five-month old Noah Acreman has endured more challenges in his short life than many.

The little boy suffered breathing difficulties at four weeks of age and was admitted to the Royal Children’s Hospital.

He was diagnosed with pneumonia and then two days later he was also diagnosed with bronchiolitis.

Noah’s condition improved, however on the day his parents took him home, a shock diagnoses changed their lives forever. Noah has cystic fibrosis.

“I didn’t even know what cystic fibrosis was, let alone know I was a carrier,” Noah’s mother Ebony Acreman said. “It was the shock of my life.”

The Sunshine West infant faces a life of treatments, medications, physiotherapy and frequent hospitalisations.

Cystic fibrosis is the most common, inherited, life-threatening condition affecting young Australians. It primarily affects the lungs and digestive system.

Despite major advances in treatment, the average life expectancy for someone born with cystic fibrosis is 37 years.

Ms Acreman says the past five months have been challenging but the support she’s received from Cystic Fibrosis Community Care has been overwhelming.

In an effort to give back and help raise awareness of the condition, Ms Acreman and 40 of her family and friends joined more than 1800 other participants in the Great Strides fun run held at The Tan in Melbourne’s Royal Botanic Gardens on Sunday.

Ms Acreman and ‘Team Noah’ raised more than $5500 for Cystic Fibrosis Community Care.